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Cochrane Cystic Fibrosis and Genetic Disorders Group


The Cochrane Cystic Fibrosis and Genetic Disorders Group

Entrance to Alder Hey HospitalThe Cochrane Cystic Fibrosis and Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

Activities of the Group are co-ordinated by its Editorial Base, located within the Institute of Child Health, University of Liverpool and based at Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom.

New podcast

You can see our Co-ordinating Editor summarise the findings of the updated review on antibioitic strategies for eradicating Pseudomonas aeruginosa in people with cystic fibrosis in his podcast below.


Published reviews and protocols

On Issue 3, 2015 of The Cochrane Library we have published a total of 139 reviews and 26 protocols. There are also 20 registered titles currently progressing to protocol status. The production of these reviews involves a network of over 900 contributors (authors, consumers and referees) throughout the world. We very much welcome interest from new consumers, referees and potential reviewers. Further information can be obtained by contacting the group

Recently published reviews include:

  • Potentiators (specific therapies for class III and IV mutations) for cystic fibrosis
  • Standard versus modified postural drainage in infants and young children with cystic fibrosis
  • Interventions to reduce inflammation in familial Mediterranean fever
  • Enzyme replacement and substrate reduction therapy for Gaucher disease

Our newest protocols are:

  • Treatment of chronic staphylococcus aureus pulmonary infection in patients with cystic fibrosis
  • Hydroxyurea for reducing blood transfusion in non-transfusion-dependent beta thalassaemias 

Webpage for consumer summaries

Why don't you take a look at the consumer website for review summaries by clicking hereIt offers language translations, author podcasts and new Cochrane products (like PEARLS) all in one place!  The Consumer Network are continually working to improve the site further, so use the "Tell us what you think" link in the bottom-left of the search box to let them know what you like or don't like about this new site.



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Page last updated: Wed 25th Mar 2015 12:27:48 CET