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Cochrane Cystic Fibrosis and Genetic Disorders Group

Welcome

The Cochrane Cystic Fibrosis & Genetic Disorders Group

Entrance to Alder Hey HospitalThe Cochrane Cystic Fibrosis & Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

Activities of the Group are co-ordinated by its Editorial Base, located within the Institute of Child Health, University of Liverpool and based at Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom.

Published reviews and protocols

On Issue 8, 2014 of The Cochrane Library we have published a total of 131 reviews and 32 protocols. There are also 25 registered titles currently progressing to protocol status. The production of these reviews involves a network of over 900 contributors (authors, consumers and referees) throughout the world. We very much welcome interest from new consumers, referees and potential reviewers. Further information can be obtained by contacting the group

If you have cystic fibrosis and are interested in nutrition, check out our new review on appetite stimulants for cystic fibrosis or the update we have just published on antioxidant supplements for cystic fibrosis. Our updated review on oscillating devices for airway clearance in cystic fibrosis now includes data from a large trial comparing The Vest and PEP, find out what the results were here.

Our updated review on osteogenesis imperfecta (or brittle bone disease) includes six new trials, which although have not changed the conclusions of the review, have contributed more data. Likewise, our updated review of statins for children with familial hypercholesterolemia has incorporated the results of a large multicentre trial, but its conclusions have remained.

New protocols include an overview of airway clearance techniques for cystic fibrosis, exercise for haemophilia and conjugate vaccines for Haemophilus influenzae type b in people with sickle cell disease - keep looking out for these as they progress to new reviews in the next few months.

Webpage for consumer summaries

Why don't you take a look at the consumer website for review summaries by clicking hereIt offers language translations, author podcasts and new Cochrane products (like PEARLS) all in one place!  The Consumer Network are continually working to improve the site further, so use the "Tell us what you think" link in the bottom-left of the search box to let them know what you like or don't like about this new site.

 

 

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Page last updated: Mon 11th Aug 2014 11:12:01 CEST