We are an international network of healthcare professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials for treating cystic fibrosis and other genetic disorders (haemoglobinopathies. coagulopathies and inborn errors of metabolism). Our editorial base is located within the Department of Women's and Children's Health, University of Liverpool and based at the Institute in the Park which is part of Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom.
New podcast on the use of oscillating devices in cystic fibrosis
One of our cystic fibrosis editors, Lisa Morrison, has recorded a podcast presenting the findings of her recently updated review 'Oscillating devices for airway clearance in people with cystic fibrosis'. People with cystic fibrosis have too much sticky mucus in their lungs which can lead to constant infection and inflammation. This damages their airways and worsens lung function over time. Chest physiotherapy is used to clear the mucus from the lungs, but there are several types of physiotherapy available. The review (35 studies with over 1000 participants) compares oscillating devices to other methods of airway clearance, including other mechanical devices, manual techniques and breathing techniques. You can listen to the podcast here.
By getting involved in these priority setting partnerships you can help shape future research. We have already successfully been invovled in a priority setting partnership for CF and you can see the results here. A new priority setting partnership is now open for bleeding disorders and if you have a bleeding disorder and are 8 years of age or older, or if you are a carer for someone with a bleeding disorder, we strongly encourage you to participate. Clinicians and other health professionals are welcome to participate too. More information can be found here.
Latest output published on The Cochrane Library
On Issue 6, 2017 of The Cochrane Library we have published a total of 164 reviews and 29 protocols. There are also 21 registered titles currently progressing to protocol status. The production of these reviews involves a network of over 1000 contributors (authors, consumers and referees) throughout the world. We very much welcome interest from new consumers, referees and potential reviewers. Further information can be obtained by contacting the group.