Access to the registers
The specialised registers are published in CENTRAL in the Cochrane Library. Cochrane contributors can also access the register via the Cochrane Register of Studies (CRS) Online. The registers can be searched by adding 'and SR-CF' to the end of your search strategy.
The editorial team has developed and continues to maintain databases of trials (“specialised registers”) as a resource for our review authors; and for all our reviews we undertake searches of the appropriate register – the Cystic Fibrosis Trials Register, the Haemoglobinopathies Trials Register, the Coagulopathy Trials Register or the Inborn Errors of Metabolism Trials Register. Each register is compiled from electronic searches of the Cochrane Central Register of Controlled Trials (CENTRAL) (updated each new issue of the Cochrane Library), weekly searches of MEDLINE and hand searching of journals and conferences relevant to each register.
We only include randomised controlled trials (RCTs) or quasi-RCTs (or those that could possibly be either) as defined by the Baltimore Cochrane Centre Hand Search Manual. They must also relate to one of the health conditions covered by the scope of the CFGD Group. Any trials identified are reviewed by the Information Specialist (IS) to ensure that they meet the criteria for inclusion in our registers. All relevant references are then added to the appropriate specialised register. Some of our registers are “coded” with keywords for condition and intervention so it is possible to limit a search to a specific area of interest.
Note: Trials relating to haemophilia and HIV/AIDS are only included in the Coagulopathies Specialised Register if they are assessing treatment of haemophilia. Those that look at HIV/AIDS treatment in individuals who also have haemophilia are not added to the register.