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Cochrane Cystic Fibrosis and Genetic Disorders Group

Welcome

The Cochrane Cystic Fibrosis & Genetic Disorders Group

Entrance to Alder Hey HospitalThe Cochrane Cystic Fibrosis & Genetic Disorders Review Group comprises an international network of health care professionals, researchers and consumers preparing, maintaining, and disseminating systematic reviews of randomised control trials in the treatment of cystic fibrosis and other genetic disorders.

Activities of the Group are co-ordinated by its Editorial Base, located within the Institute of Child Health, University of Liverpool and based at Alder Hey Children's NHS Foundation Trust, Liverpool, United Kingdom.


Trials Awareness Week

Do you want to find out more about clinical trials? Why are they important and what's it like to take part? Starting on 26 January, the UK CF Trust is running a Trials Awareness Week in conjunction with cf/Aware. Go to http://www.cysticfibrosis.org.uk/news/trials-week to find out more.

 

Published reviews and protocols

On Issue 1, 2015 of The Cochrane Library we have published a total of 131 reviews and 31 protocols. There are also 23 registered titles currently progressing to protocol status. The production of these reviews involves a network of over 900 contributors (authors, consumers and referees) throughout the world. We very much welcome interest from new consumers, referees and potential reviewers. Further information can be obtained by contacting the group

If you have cystic fibrosis and are interested in nutrition, check out our new review on vitamin E supplements for cystic fibrosis .

A recent protocol considers magnesium for sickle cell disease and our most recent protocol is looking at bypassing agent prophylaxis in people with hemophilia A and B with inhibitors - keep looking out for these as they progress to new reviews in the next few months.

Webpage for consumer summaries

Why don't you take a look at the consumer website for review summaries by clicking hereIt offers language translations, author podcasts and new Cochrane products (like PEARLS) all in one place!  The Consumer Network are continually working to improve the site further, so use the "Tell us what you think" link in the bottom-left of the search box to let them know what you like or don't like about this new site.

 

 

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Page last updated: Mon 26th Jan 2015 12:58:55 CET